CI5: Wrapping It Up

As our blog posts come to an end, I just wanted to thank everyone for taking the time to read over my passions, civic issues, and more. I appreciate all of your meaningful comments and respectful views. For my last civic issues post, I wanted to slightly discuss the conclusion I came to for my Advocacy Project, and how I plan to incorporate all of my hard work in RCL to my life outside of academics.

My advocacy project will discuss the individual actions one can take to help minimize the rates of infant mortality within the black community. After having Professor Freymiller review my RCL5 post, he acknowledged the fact that IMR is perhaps the lesser-known of the two issues I was stuck between. Due to this, I felt it as my duty to be an advocate for this issue. I hope that the results of my project are highly impressive and they hit every component of a successful “advocacy project”, because this topic is one I am very passionate about.

Since RCL was a year-long course, I was able to experience many things and learn valuable material that I can, and hope to, implement into my future plans. The aspects of public speaking can be incorporated into my future profession: becoming a lawyer. This skill can be most beneficial when working on advocacy related projects, such as defending my client and getting them the justice they deserve. The intense writing we have done this semester has taught me howe to better articulate ideas and ultimately become an even better writer than I was before. All of our unit projects have taught me how to deeply analyze, understand, and apply given information to real world problems. My problem solving skills have been enhanced as a result, and this will help me thrive as a leader socially, personally, and more.

I want to end this blog by thanking you guys again, as well as both of my wonderful RCL professors. You guys have made this experience a great one and I am so glad I was able to work with and get to know you all. I hope all of you achieve you goals and reach all of your endeavors prosperously. Take care!

CI4: How Can We Improve Trust?

Building trust within someone or something involves many components. Entities such as policy makers, employees, and children all have to work together in order to build trust. Racism is ultimately the root cause of this mistrust which led to the development of a model titled “Racism as a Root Cause” that was created by the American Academy of Pediatrics. This model (RRC) is an approach for pediatric healthcare specifically that serves to develop strategies, policies, and mechanisms to address the root causes of health disparities. The authors of this article state that there are four components that are critical to advancing population health, and these include: precise impacts for racially marginalized communities, system changes in regards to policies and environments, long-term sustainable impact, and reparations regarding historical injustices within these systems.

The author of the article also provides a list of ways that one can check if they are dealing with a population of individuals that experience racism, which I will discuss more in my last CI post. The 1934 establishment of the Federal Housing Administration (FHA) is a prime example of how the white community was uplifted using the four components of the RRC approach. If the white community can be uplifted through these techniques, the same can apply for marginalized groups of people as well. Lastly, the author provides four ways that we, as a nation, can integrate the RRC into the field of pediatric health which I will also include in my last post. This approach targets racism at any level, and since we have the resources to address racism as a root cause at the childhood spectrum, we can prevent the increase of racial health disparities in America.

It is a known fact that people of color receive less and worse care compared to white Americans and according to an article I have read, African American men have it the worst. At age 45, their life expectancy is 3+ years less than that of non-Hispanic caucasian men. Notably, black patients are tended to more when they are seen by black doctors/health care providers. There seems to be an increase in communication and empathy on both ends when these groups of people are racially matched. In order to limit the amount of mistrust between health care providers and patients, we must improve communication, increase transparency, create welcoming communities, and attend to access barriers. It is recognized that this lack of trust can have positive and negative effects on the black community. On the positive side, it can empower one to fight for change, on the negative side, it can cause individuals to avoid the proper care they need. If we strengthen these vital relationships and get rid of the social and racial disparities within America, it can build trust and cause great benefits for our nation as a whole.

CI3: The Tuskegee Syphilis Study

The Tuskegee Study was funded in 1929 by the Julius Oswald Foundation in order to observe and determine the natural course of untreated, latent syphilis in black men. The experiment took place in the city of Tuskegee since that city had the highest syphilis rate in the 6 counties studied. The two main conductors of this study were Dr. Taliaferro Clark and Raymond A. Vonderlehr. The experiment was eventually launched in 1932, initiated by the United States Public Health Service (USPHS) and included 400 syphilitic men and 200 uninfected men, which represented the control group in the experiment. The study had a lot of racial influences, rather than it being an ethical and science-based study. Darwinism had a heavy influence on the structure of and unethical behaviors that occurred in the medical field, which eventually swayed the operation of this study. Physicians believed that lust, immorality, unstable families, and reversion to barbaric tendencies made black people especially prone to venereal diseases such as syphilis. High syphilis rates were also linked to insanity and crime. Doctors at the time were set on the idea that better medical care for black people could not alter the “evolutionary scheme” they are a part of.

The experiment occurred during a time where major publications advocated for treatment, no matter the stage of sickness. Studies also showed that untreated syphilis could lead to  health complications such as cardiovascular disease, insanity, and premature death. In the year the study was conducted, the USPHS sponsored and published a paper by 7 syphilis experts whom advocated for the treatment of syphilis, but they also had unethical roles in this study. The main conductors of this study promised syphilis treatment to the infected persons if they did become test subjects, but Dr. Clark found it only valuable to observe the consequences of untreated syphilis. The subjects were given mercurial ointment and inadequate doses of neoarsphenamine, which were both non-effective. Conductors were able to get away with these false treatments for so long due to the lack of knowledge Negros had at this time.

The study was supposed to initially last for 6 months, but it lasted for about 40 years. Besides the false promises of treatment, USPHS promised to cover burial expenses once certain men decided to leave the study after they realized the “treatments” were not working. Since funerals were important to blacks who inhabited rural areas, many decided to continue and they were given $50 up front to gain the “trust” of these organizations and doctors. Throughout the course of this study, penicillin was discovered as a treatment for syphilis, yet it was not administered to any subject. To add to the numerous unethical behaviors, those who were not infected that eventually became effected were transferred to the experimental group, which is an inept violation of standard research procedure. Latent syphilis cases were increasing, more deaths were occurring due to untreated syphilis, and the USPHS began to influence the “no treatment” policy on infected drafts in the army. To end on a lighter note, by 1952, 30% of test subjects received some penicillin, but it was through their own actions.

The Department of Health, Education, and Welfare ended the study after it continuously appeared in the national press in 1972. This same year, the department formed the Tuskegee Syphilis Study Ad Hoc Advisory Panel on August 28. This panel focused on the justification of the study and if penicillin should have been provided when first available. The panel consisted on 9 members, 5 of which are black. The final report they developed is questionable because it failed to incorporate many issues caused by USPHS. The members of the panel were afraid to be viewed as a critique on human experimentation, which may be why the information included in the report was limited.

All in all, this experiment was never meant to observe and determine the natural course of untreated, latent syphilis in black men; it was used as a tool to undermine the African American race. Doctors, physicians, government officials, and more (both black and white) worked together to “accomplish what man cannot do”. Blacks, sex, and disease were the main focus of why black people were the way they were in the early 20th century. This is a prominent example of why minorities, especially black people, unfortunately do not trust the medical system.

CI1: Minorities Mistrusting the Medical System

In my Civic Issues blog posts, I plan to engage you all in the topic of mistrust African American communities have towards the medical system and/or the health care providers who work for this system. To begin, I will be addressing the origins of this mistrust. Following, I will be placing my personal opinions and inviting fresh perspectives and ideas on specific situations that showcase why these individuals lack trust within this establishment. Lastly, I will provide ways on how to improve trust between these two groups. I am a firm believer that solving systemic issues, no matter how big or small, can lead to great, beneficiary outcomes for the United States, and I hope that I can push you to believe the same.

As a black woman who has encountered numerous eye-changing experiences, I always felt as though my duty and purpose in life was to advocate for those who face similar struggles that I do. Being “woke” about these important civic issues is a major part of my identity and I love sharing the knowledge I obtain when researching these topics. These issues drive me to be an advocate for change and be the support system not many of my African American counterparts have. Black Americans lack a lot in the United States, and I feel as though bringing awareness to issues such as this is the first step to major change.

The medical system has been around since as early as 1735 and it is a system that is vital to the lives of all individuals no matter your age, race, gender, religion, creed, etc. This system has a long history of mistreatment amongst African American individuals, dating as early as slavery. Some recognizable historical moments that showcase this include the Tuskegee experiment and the forced sterilization of black women, which I will be covering in future blogs to come. You may believe that this lack of trust is typically identifiable between civilians and medical professional, yet some African American medical professionals do not trust the system they work for either.  It is important to educate ourselves on the history and current impacts of such systemic issues and their significance to our lives, our ancestors lives, and the lives of those to follow.

Though the word “mistrust” has a negative connotation, lack of trust can lead to positive and negative outcomes for African American people. For example, a person’s lack of trust can cause them to avoid health care which can lead to sickness, while on the other hand, some individuals may use this to advocate for health system reform. This issue is a complex one that I plan to uncover and bring deep awareness to by the end of this semester. I hope my blog posts will leave you with an open mind and a passion for advocacy in order to combat a severe systemic issue our country have been battling for years.

https://www.commonwealthfund.org/publications/newsletter-article/2021/jan/medical-mistrust-among-black-americans