This unit examines the varying definitions of data and the intricate relations data has with multiple actors as it flows in the “lifecycle.” A number of ethical questions emerge as data interacts with various stakeholders within and beyond the research group. Concepts like integrity, impact, rights, and epistemic norms might help us make sense of the ethical implications of research data. Finally, some strategies at the research design stage would help ensure data quality and maintain ethical data practice. These strategies include creating clear guidelines for data practice, maintaining effective communication, providing proper training, and clearly defining and assigning responsibility within a research group.
Ananny, Mike. 2016. “Toward an Ethics of Algorithms: Convening, Observation, Probability, and Timeliness.” Science, Technology & Human Values 41 (1): 93-117.
Chen, C. L. Philip, and Chun-Yang Zhang. 2014. “A Formal Definition of Big Data Based on Its Essential Features.” Information Science 275: 314–47.
Committee on Science, Engineering, and Public Policy (National Academy of Sciences, National Academy of Engineering, and Institute of Medicine). 2009. On Being a Scientist: A Guide to Responsible Conduct in Research. 3rd Edition. Washington, D.C.
Coulehan, Meghan B., and Jonathan F. Wells. 2006. “Guidelines for Responsible Data Management in Scientific Research.” https://ori.hhs.gov/images/ddblock/data.pdf.
Giffels, Joe, Sara H. Vollmer, and Stephanie J. Bird. 2010. “Editors’ Overview: Topics in the Responsible Management of Research Data.” Science and Engineering Ethics 16 (4): 631–37.
Joshi, Margi, and Sharon S. Krag. 2010. “Issues in Data Management.” Science and Engineering Ethics 16 (4): 743–48.
MacIntyre, Alasdair. 1999. “Social Structures and Their Threats to Moral Agency.” Philosophy 74 (289): 311–29.
Pascal, Chris B. 2006. “Managing Data for Integrity: Policies and Procedures for Ensuring the Accuracy and Quality of the Data in the Laboratory.” Science and Engineering Ethics 12 (1): 23–39.
Resnik, David B. 2008. “Who Owns Your Data?: Ethical Issues in Data Management.” https://www.ncsu.edu/grad/preparing-future-leaders/docs/Ethical_Issues_in_Data_Management_Handout.pdf.
Ribes, David, and Steven J. Jackson. 2013. “Data Bite Man: The Work of Sustaining a Long-Term Study.” In “Raw Data” is an Oxymoron, edited by Lisa Gitelman, 147–66. Cambridge, MA: The MIT Press.
Rosenberg, Daniel. 2013. “Data before the Fact.” In “Raw Data” is an Oxymoron, edited by Lisa Gitelman, 15–40. Cambridge, MA: The MIT Press.
Snijders, Chris, Uwe Matzat, and Ulf-Dietrich Reips. 2012. “‘Big Data’: Big Gaps of Knowledge in the Field of Internet Science.” International Journal of Internet Science 7 (1): 1–5.
van der Velden, Maja. 2009. “Design for a Common World: On Ethical Agency and Cognitive Justice.” Ethics and Information Technology 11 (1): 37–47.
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