Monthly Archives: February 2022

Allism

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As I have mentioned before, autism, according to most psychologists nowadays, is actually just another variation of the human brain, known as a neurotype. Because the structure of their brain is different, it is reasonable that different strengths and weaknesses will be present, or more likely, in those with autism. However, in the current version of the DSM, the diagnosis for autism still focuses solely on the weaknesses autistic people are more likely to have. Even worse, some of the “deficits” they list aren’t actually flaws, and are really just seen as such because the majority of the world cannot relate. While we wait for the DSM to change their perspective on ASD, many ASD advocates and allies have come to the rescue with something called “allism.” Allism is essentially a parody to autism, as in, it is the hypothetical condition that neurotypical people would be diagnosed with if they were the minority. If you have never skimmed through the diagnostic criteria for autism, I suggest you do that first, which will be in the first link. In the second link, the diagnostic criteria for allism is described.

 

https://www.cdc.gov/ncbddd/autism/hcp-dsm.html

https://psychcentral.com/blog/aspie/2018/09/allism-spectrum-disorders-a-parody

 

The purpose of the parody is to better show allistic (non-autistic) people how absurd it is that our perfectly healthy traits and behaviors are so badly pathologized, even in the Western world. Although everything described in the DSM is true of autistic people, the traits are described in an exclusively negative light, such as with the repetitive use of the word “deficit.” Additionally, not every autistic person experiences these differences so extremely as described, meaning that the DSM does not represent the true spectrum of experiences autistics can have.

 Similarly, with the allism description, traits of those with allism are described with negative diction and undertones, and any possible positive aspects of allism are completely left out. As I hope we can all agree, this is quite unfair, no matter which neurotype it affects. In order to allow autistics to live their truth, we must stop pathologizing their existence and accept them for what they are: imperfect people, just like everyone else, who come with their own unique set of assets and flaws.

Oh, and one more thing. Considering how autism is not a bad or inferior thing, I just wanted to include my input on the “autistic person” vs. “person with autism” debate. Everyone has their preferences, but according to many studies I have read at least, it seems that most autistic people prefer the former. What does it matter what order the words go in, anyway? The idea that the two options have imaginary deeper meanings is definitely quite allistic….. lol. But for those that do insist on a deeper meaning between the two, consider this perspective instead:

And don’t forget that every autistic person prefers different language, and if you’re unsure, it never hurts to ask.

Connections to Intellectual Disability

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If ASD is just another neurological variation in our species and not a disorder, then why is life often much more difficult for those affected by it? Taking away the societal aspects which negatively affect those with ASD, there is still a much higher prevalence of intellectual disability within the community. This fact has been brought up several times by people who believe we should continue the search for a “cure” for autism, since it is, apparently, inherently more detrimental than being neurotypical.

However, the connection between autism and intellectual disability is not so clear. More and more research is showing that perhaps being autistic does not raise an individual’s chances of being intellectually disabled, or vice versa.

As Emily Sohn from Spectrum News explains, there are several factors which have led scientists and society to associate intellectual disability with ASD.

“Parents may seek an autism diagnosis because services are often easier to access for that condition than for intellectual disability — or require an autism diagnosis to access at all.”

In other words, people with intellectual disability can often be misdiagnosed with autism for easier access to the resources they need for their condition, which is quite unfortunate.

Another factor to consider is how often those with intellectual disability also struggle in areas of communication, making them harder to distinguish between those with autism. Additionally, Sohn describes how many parents prefer to look for an autism diagnosis because having autism can sometimes be less stigmatizing than having an intellectual disability, also contributing to the number of misdiagnoses.

On the other hand, there are also many autistic individuals who are misdiagnosed with intellectual disability. When a child seems less socially aware, is less talkative, or does not talk at all, it is not rare for psychologists to sometimes make assumptions about the intelligence of the child. It can also sometimes be more difficult to find the IQ of an individual who has communication differences or sensory difficulties, as those with autism often do. As one interviewee from Sohn’s article states, “We’re weird, there’s no denying that. But there’s a difference between being different and straight up not understanding things.”

Considering both of these patterns psychologists have recently become aware of, it is no wonder that the incidence of intellectual disability is more common among those with ASD. Luckily, since this issue has been studied more and more in recent years, the rate of this dual diagnosis has gone down substantially. In the 1980’s, the percentages of those with ASD and mental retardation (now called intellectual disability) was around 70%, whereas by 2014, that number has gone down to 30%.

One more thing you may be thinking is, what if autism and intellectual disability really are connected, biologically? While it is certainly a possibility, there has been no definitive evidence thus far that the two are connected. Some studies have shown that certain rare genetic mutations are linked to both autism and intellectual disability, but only in the case of conditions such as Fragile X syndrome and Phelan-McDermid syndrome. Other studies predict autism and intellectual disability have very little genetic connection considering the current evidence suggesting intellectual disability more often has to do with genetic deletions, and autism more often has to do with genetic duplications. Overall, the science surrounding the subject is not clear enough for us to make any conclusions.

While there is absolutely nothing wrong with being intellectually disabled, autistic, or both, it can be quite destructive when the diagnoses for those affected are not correct.

Treatment and accommodations for those with autism and intellectual disability can look very different, and in order for people of either condition to get the help they need, we have to continue to find the distinction between the two.

 

Spectrum News Article:

https://www.spectrumnews.org/features/deep-dive/the-blurred-line-between-autism-and-intellectual-disability/

The History of Autism – Part 3/3

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With scientists and society collectively wanting a cure for autism, several unfortunate attempts at “fixing” autistic children were made. In the beginning of the 21st, something called “Applied Behavioral Analysis” or ABA became a much more popular treatment for autistic children, but for the longest time, it did more harm than good. The “therapy” would involve children being taught how to act “non-autistic” through both positive and negative reinforcement (such as shouting, taking away toys, or even electric shock). By forcing children to mask and punishing their natural inclinations, it is estimated that around 50% of ABA autistic patients suffered PTSD as a result (Kupferstein).

Some newer versions of ABA involve more helpful and less traumatic approaches, such as teaching the child social skills in a way that is comfortable for them, and allowing them to express themselves in their normal, autistic way. However, there are still many clinics that have not adopted this new approach.

In response to ABA and the overall ignorance of mainstream society, autistics and their allies created the “Neurodiversity Movement,” an advocacy group attempting to normalize autism and disassemble misinformation. The group helps spread new research that suggests that autism is simply a “neurotype,” as I have described before. One of the main enemies of autism activists is an organization you have probably heard of: Autism Speaks.

Autism Speaks was founded in 2005 after one man’s grandchild had been diagnosed with autism. In response, he created an organization which would go on to fund a potential “cure” for autism, ineffective and abusive programs like ABA, and even research which sought to prove that vaccines cause ASD. They have also put out many advertisements over the years illustrating how autism is “plaguing our children” and makes autistic people out to be dangerous and psychopathic. If you don’t believe me, a simple Google search of “Autism Speaks ads” will show you what I am referring to. Here is one example:

 

Another thing autistic advocates have been trying to disassemble is the idea that there are “worse” or “better” types of autism, since most recent science on ASD has shown that genetically, and neurologically, there are no differences between those 4 categories of autism. Even though the evidence was clear enough that the DSM eventually combined all 4 autistic types into one, many people still use outdated and inaccurate terms such as “high functioning” and “Asperger’s,” as I have discussed before. These terms are not only incorrect, but come from a literal Nazi scientist, and frankly, anyone who chooses to identify themselves or their children with that man is an enigma to me.

Speaking of enigmas, my last point in my summary of autistic history will be about the puzzle piece, a symbol originally created to represent how autistic people are enigmas to neurotypical people, are usually children or child-like, and cannot fit into the puzzle that is the rest of society. That symbol was meant to make us seem like the puzzle piece that doesn’t quite fit, and with its colorful, childlike design, was also meant to infantilize us. Now that you are aware of the history of autism, perhaps you understand why it is important that autistics and neurotypicals both distance themselves from all of that ignorance and mistreatment we used to, and still do, experience. Instead of the puzzle piece, I urge you to use the infinity symbol, which represents the spectrum and infinite possibilities of those with ASD. For most people, it’s just a shape, but for those of us who are affected by the discrimination of the people who created that shape for us, it means so much more.

History Scope’s video:

http://https://www.youtube.com/watch?v=Zx62-79XXno

youtube.com/watch?v=Zx62-79XXno

https://www.spectrumnews.org/features/deep-dive/controversy-autisms-common-therapy/

Kupferstein’s study on the effects of ABA on autistic individuals:

https://www.emerald.com/insight/content/doi/10.1108/AIA-08-2017-0016/full/html

The History of Autism – Part 2/3

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For the longest time, autism was thought to be something quite rare, and thanks to Leo Kanner, many also thought it only affected children. In 1981, however, psychologist Lorna Wing went looking for support for her autistic daughter, quickly realizing that there were virtually no options available. She discovered that in order to get the government to fund assistance for autistic children, she must prove to the world that autism is actually much more common than previously thought. After reading about autistic traits as much as possible and having foreign works translated into English, Wing realized that autism was actually a spectrum, with every individual having different autistic traits to different degrees. Now labelling the condition as “Autism Spectrum Disorder,” Wing presented her findings to the scientific community who eventually decided to separate autism into 4 main categories: Classic Autism (those who have repetitive behavior and social difficulties), Heller’s Syndrome (those who’s autistic traits show up later than usual), Asperger Syndrome (those with social difficulties, nonverbal communication, and repetitive behaviors and interests), and PDD-NOS (Pervasive Developmental Disorder Not Otherwise Specified….. basically, everyone else on the spectrum).

One main issue with all of the research that was done up until this point was that only children in psychiatric institutions were studied. In the 90s, a study in the UK finally looked at other children attending mainstream schools, now finding that around 0.71% (not 0.1% as previously believed) of children were most likely on the spectrum. Knowing that autism was actually somewhat common, society and the scientific community became increasingly aware of the fact that autism was not a horrible disability, and in fact was just another way to be human. We will continue to discuss further research into the prevalence of autism, but here is a good visual demonstrating how the idea of autism being “rare” has changed over time. No, this does not mean that more and more autistic people are being born. As History Scope points out, “Pluto wasn’t discovered until 1930, but I’m pretty sure it was there the whole fucking time.” The same logic can be applied to autism. Just because many autistic people were not yet being diagnosed does not mean they did not exist.

One of the most offensive and inaccurate ideas to be spread during this time of emerging autistic research was the notion that autistic people had social differences due to a lack of empathy. In reality, autistic people on average actually might have more empathy than others, causing them to become overwhelmed. However, the truth about this would not be recognized for quite some time.

Once the media began discussing ASD in various way, this and many other incorrect stereotypes were further perpetuated. Some media portrayed autistic people as stupid, others as genius, some as childish, and many as simple nuisances to others, not to mention the crazy idea that only white men happen to be autistic. With society becoming convinced of the “tragedy” of autism, most people thought it would be best to look for a “cure.”

In my next entry, you will see the continuation of the history of autism as it makes many important transformations in the 21st century.

 

History Scope’s video:

youtube.com/watch?v=Zx62-79XXno

 

 

The History of Autism – Part 1/3

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Considering how misunderstood and stigmatized it still is today, it probably will not surprise you to hear that the whole history of ASD is very unpleasant. However, our society has come a long way since the beginnings of what we now call “autism,” and the key to continuing this progress is being fully aware of the previous struggles and notions surrounding the community.

For this post I have done a lot of research, and everything I talk about can be found in one of the links I will provide. My favorite source comes from the YouTube video I have put below, and I highly suggest watching it if you are interested in learning more. Because of how much information there is on this topic, I will be writing a few entries about it, that way those who do not want to read a whole 1851-word blog entry don’t have to… lol.

So, the first time autism was officially identified was in 1908 in reference to patients with schizophrenia who were also very withdrawn, which continued to be the use of the term into the 1940s. It was basically believed that autistic people were actually schizophrenic because they did not seem interested in the outside world. This could definitely be seen as a similarity between the two conditions, but it took a while for scientists to find out that both had very different reasons for their social aversions.

However, autism was directly studied in 1924 by Grunya Sukhareva, a child psychologist who originally also believed that these autistic individuals must have something similar to schizophrenia, but went on later in her career to find a theory about ASD that is very similar to how scientists view the topic today. Her work, unfortunately, would not be looked at by anyone outside of the Soviet Union until 2013 when it was finally translated into English. Some speculate that the reason her work took so long to become recognized was also due to the fact that, as a woman, she would not be taken seriously until society was ready. As a result, progress in the autistic community would not yet come for many more decades.

Then, in the 1940s the Nazi regime, in order to decide who should or should not be allowed to reproduce and live in their eventual “perfect” human society, funded research that would help child psychologists essentially separate the “good” autistics from the “bad” autistics. One of these psychologists was Hans Asperger who was given the job of sending the “impure” children to be killed. Those who still seemed autistic yet were better at language and had a higher IQ were then given the term “autistic psychopathy,” which later transformed into “Asperger Syndrome.” This term did not become accepted in the scientific community, however, until the 1980s since much of the research funded by the Nazi government was ignored and buried.

As the first scientist in the Western World to study autism, Leo Kanner is another important researcher who would actually have his work reviewed and recognized by the scientific community in 1943. Coming to a similar conclusion as Asperger, he saw that autistic children were very distinct from those with schizophrenia, and he gave them the label of “Kanner Syndrome.” These children, he noted, were not interested in the rest of society, had certain repetitive movements, and would become overwhelmed easily. As he became more well-known throughout the world, many young patients would be sent to him to be studied and potentially diagnosed. Over many years, he discovered many other key symptoms of autism, such as strict routines, social difficulties, sensory problems, high IQ, and good memory. However, Kanner’s diagnostic criteria was so narrow that he predicted that around 1 in 1,000 people were autistic. In reality, the number is closer to 1 in 68, meaning that a lot of children would be misdiagnosed in his clinic. Additionally, he incorrectly concluded that autism was probably caused by something called “refrigerator moms,” a term that refers to “cold” parenting by the child’s mother. This idea would continue to be accepted by society and scientists until the 1960s.

This will be the end of my part 1 of ASD history. If you are interested in hearing more, don’t hesitate to take a look at my other 2  entries from today.

 

History Scope’s video:

http://https://www.youtube.com/watch?v=Zx62-79XXno

youtube.com/watch?v=Zx62-79XXno